Wordless Wednesday: Birthday by the Pictures

Thank you to everyone who made yesterday an awesome kick off to the next (fantastic) year of my life!

The Man, The Myth, The Legend...

So once upon a time, there was a beautiful and brilliant diabetic girl who spent 13 years holed up in her own world of academics, rocks, and sweet flour-y things. Despite being diagnosed at a very young age, she had never really known any other fun and enthusiastic kids with diabetes. She never went to camp (for reasons that are still unknown but mostly amount to too much studying) and never really participated in interactive outreach events (there were a few JDRF walks I vaguely remember as a kid and a couple of expos). One day (not too long ago), the light switch went on. There must be other people out there like me. People who live and breathe with music. People who bake things covered in real sugar. People who skydive, rock climb, and ride their bikes across the country. People who REALLY live life to the fullest in spite of a silly chronic condition. So she went hunting on the Internet and built a life. A persona. A circle of friends that she had never really met...

My very first "real" Diabetic meet up was the UNite for a Healthy Future event in NYC just a few weeks ago. But it was a little unusual. I met amazing and fantastic diabetics with crazy lives. People like who I had run into online that looked and sounded nothing like I would've expected. People who did make my eyes gleam like a fan girl despite my subdued manner. It was spectacular and I met all of these people who shared great stories and skills. People who didn't look at me funny when I tested my blood sugar or chomped down on glucose tabs.

My second and third Diabetic (swap-story)meets were JDRF walks. I did two in NJ along the shore. I met lots of families. I did pump bumps with kids. I met mom's and dad's who littered me with stories about how well or poorly their children with Diabetes were doing. I smiled and enjoyed the sun and answered questions.

Not to say that those moments weren't special and that I'll forget them, but this Sunday night was different. I was anxious. Excited. Teeming with energy. I wanted to run and jump and scream and shout. I was wandering into a big city by myself to meet just one stranger. One specific stranger. A stranger who anyone (and everyyyyyyyone) could tell was special in the way he related to others. In the way he spoke. In the way he tweeted song lyrics. I had seen a lot of his posts on Twitter and said to myself, "He's way too awesome. Why would he care what I have to say." But I think he's already demonstrated in his short time stateside that what I (and every other diabetes blogger) do matters.

I knew he was meeting up with people in Kansas City. I didn't even know he was going to be in NYC until a week ago. Already signed up for a 4 day conference in Hartford, I knew I was going to miss the bowling extravaganza. I, for some reason, assumed he was leaving on Sunday before I'd be back in NJ. And then, on a whim, I tweeted him. And he responded. And said he was leaving Monday. And my adrenaline kicked in.

He called and my knees shook in the wind (like a well composed fan girl). "I'll be the one with an accent," he nonchalantly concluded with. I didn't need to ask for clarification. After seeing a picture (or several dozen) and hearing his voice (both on the phone and on a DSMA webcast), I didn't have a hard time placing him. He just looked different. More alive. Less pixel-y. Thinner and taller. And I instantly felt less alone.

I don't really know how to describe the rest of the evening. We just grabbed coffee, sat in Times Square, and talked like we were new-but long lost friends. I sat there in awe of him and he just kept telling me how smart I was.

AND to top it off, I got meet Caroline (@carobanano) who I can only describe as PURE sunshine. She reminds me of my favorite roommate from college. Singing at the top of her lungs (she has a fantastic voice in case you didn't know). I'm definitely planning to go back and see her in Brooklyn. I already have a teeny-weeny SURPRISE present for her.

Like the three sugar-free Musketeers: We soaked in the lights. We posed with Batman. We made funny faces. We grabbed dinner at the Ruby Tuesday's in Times Square (and died a happy death over their cheese biscuits). We discussed music (the difference between Coldplay and the Cure). We rushed for trains that weren't quite there (neither my roommate nor I can appropriately read a weekend timetable). We just laughed (at Shhs and Soda-names) and enjoyed each other's companies. I savored each moment.

Looking at us, you'd never know we had diabetes. You'd just think we were friends. And now, that's all I ever have to say we are. (And friends will ALWAYS see each other again. One way or another).

UNite for a Healthy Future

So yesterday was the UNite for a Healthy Future event at the NY Academy of Medicine / Central Park. And the only word I can keep coming up with to describe it is amazing.

When speaking to someone (a fellow PWD, a parent, an activist, I don't really remember who exactly [more on that later]), I was recalling the last time I had physically been in the room with many other diabetics. The last time it happened was maybe 3 years after my diagnosis and it was because my new doctor really wanted me to attend their support group. Unfortunately, most of the patients were much older or much younger and a little hard for me to relate to (I'll blame my youth & lack of experience cause I'm sure they were ripe with info). Despite attending a few fundraising activities like walks, I can't say I've really ever connected with another diabetic. I've been a diabetic for over 14 years now. Which means I've been sorely missing my fellow 'betes buddies.

Walking into a group of people and just being overwhelmed by this feeling of belonging was extremely cathartic and freeing. None of that means that I didn't spend the entire day talking about what I knew about diabetes, research, the FDA, human physiology, etc. But having other people there to help explain was really comforting. Not feeling strange to say, "Hey, I need to test first," was really bizarre for me after spending sooo much time being the only PWD I know.

To prepare for the day (and the at least 1.5 hr commute of walking, trains, and subways), I packed a large bag of snacks, extra clothes, and my diabetes supplies (I assumed I'd be outside and on my feet all day). What I really needed yesterday was a lot of water, a lot of energy, and a lot of glucose. Looking back, I wish I had packed a little differently but hopefully, this experience will help prepare for future diabetes outreach events.

So I was actually volunteering [for the awesome Isabella Platon @ IDF :)] at the event in addition to just being another person with D, which meant that I got to meet an extraordinary number of people that ranged the activism gamete (and forget their names regardless of how important & influential they are [sorry!]) while running around taking care of organizational things (what? why? where? when?). There was sooo much going on yesterday that there was actually a lot that I missed but I wanted to participate in.

The bullet point rundown & SUPER-brief recap of the events:

• Live Art Mural - All day creation of art representing different Non-Communicable Diseases (NCDs). The depictions were so creative, vivid, and enigmatic. I loved meeting/talking with Zoey Stevens but really all the artists were so curious about how and why diabetes affects everyday life.
• Children's Art Mural - Great event for kids lead by two art therapists including Lea Ann Thill.
• Bike Ride - Lead by Phil Southerland & Team Type 1, a group of 10-15 adults & kids rode a 1 kilometer track around Central Park.
• Big Blue Test Video Shoot / Walk - Walking around Central Park North handing out blue balloons and "woohoo"-ing for an hour while two awesome videographers captured our excitement and activism. Love knowing I'm helping to create something that will hopefully reach many people and do some good for the less fortunate all at the same time.
• Socamotion, Tai Chi, & Zumba - Enthralling and energetic ways to get your blood circulating, but unfortunately one of the things I didn't get to experience much (read: almost any) of.
• Information/Outreach Pods - Met lots of great people from the International Diabetes Federation, dLife, JDRF NY Ride to Cure, Living In Progress, TuDiabetes, and more. Everyone was super-welcoming, super-informative, and super-empowered.

Photos from the day can be found here and here! Unfortunately in all the craziness, not only did my phone die (with no extra charger in sight) leading to no awesome Twitter updates, but also I didn't manage to get any pictures that weren't requested by other people. But one of these days, I'll figure out how to multi-task a little more efficiently.

Diabetic Art Work!

So I was wandering around online (aka not apart from my laptop for hours) and I noticed that lot of the cool blogs out there have diabetes artwork (d-art from now on) as part of their website templates and designs.

I was a little bored and kind of sick of the layout of mine so I decided to try out my hand. Now please be patient while I get around to "transforming" my blog, but here's a preview of my diabetes supplies climber. I really want to come up with a name for him. Let you know when that part of my creativity starts spewing.